Comments for PainPathways Magazine

Comment on Celebrities With Somatic Symptom Disorder! How They Diagnosed It? by Anthony John

Anthony John — Wed, 08 Feb 2023 13:51:22 +0000

Very interesting, I wonder how many of these celebrities are on a Antidepressant or Benzodiazepine. Listen, it makes sense that celebrities would be more well known to exist with these disorders considering compared to normal folks, their lives are more on display meaning more exposure.
But think about this, Somatic Syndrome disorders are just hyper fired neurotransmitters within the body which said cause hasn’t been found… Now what medications have basically zero information? Now which medication classes have no long term evidence of improvement, safety and effectiveness, now which med classes can and often do produce hundreds and hundreds of unexplained symptoms? Right… Antidepressants like SSRI/SNRI and especially Benzodiazepines. The symptoms you can experience on these meds which often happen when you are on the medication would scare you from musculatory, neurological, visual and perceptional the list can go on and on. Worst part, again there’s no long term research beyond 3 months on either of these meds, Benzodiazepines were created by Leo H Sternbach in 1954,perfected in 55,sold/reviewed in 58 and brought to market in 1960 where as Antidepressants where wildly used in 1980 when psychology lied by suggesting “The Chemical imbalance hypothesis” which medical science abandoned due to lack of evidence yet psychiatrist will still lie to patients today over… Why? To sell antidepressants that’s literally why the chemical imbalance model hypothesis was created yet since they’re creation we don’t have a single study broadcasting on long term effects, all our known long term effects come from patients who have been through the hell… They got sick with dozens to hundreds of symptoms which medical science can’t test for as most get misdiagnosed as gaslit, then they get wise and suspect the medication as the problem while the doctor lies and says “It can’t be the medication, its just your underlining condition”. They find support groups, learn how to taper and eventually get off the meds only to go through hell for years of symptoms. They recover and move on.
Now imagine if you never got wise to the meds, stayed on them while a doctor either gives you another drug, increases your dosage or adds more ontop of the one you have… How could you not be misdiagnosed with all kinds of symptoms?
Somatic syndrome or disorder is like IBS, it’s a cop out. An umbrella term which basically means “We don’t know what’s wrong and won’t look further”, but I bet once Antidepressants (SSRI/SNRI) & Benzodiazepines start gaining long term side effects, BIND (Benzo induced Neurological Dysfunction) and long term effects on the brain, Dopamine, Serotonin, GABA (GabaA), Limbic system and Nervous system both CNS and PNS, I bet whatever you wanna bet that these meds (Antidepressants and Benzodiazepines) start making up 98% of all somatic cases easily. It’s worse now because of how normalized mental health issues is becoming.

Let me clarify, Mental health issues are real no one is saying they aren’t however how Psychology/Psychiatry is approaching Mental health is single handedly the worst attempt we could of ever done in fact we do more harm to people then good. Let me explain.

Psychology is one of the biggest lies in the medical community, completely puesdoscience, there’s no medical or scientific evidence of their methods because we can’t test, psychology remains the only field in medicine where we don’t and can’t test the organ attached to study… The brain/mind. We use the DSM which currently we’re up to the DSM-5-rt edition which is a manual that lists symptoms in order to make a diagnoses, again no evidence for their diagnoses they simply get together and vote on which diagnose makes it into the book which is awful considering they are playing with human life. It’s basically all guess work mixed with a license to practice and no one says anything. The DSM is the most controversial and flawed method/tool in all of medicine because the room for error is so high. You can walk into 5 psychologist, get misdiagnosed 3-4 times using their methods.

That’s just psychologists which at least they try, psychiatry on the other hand is the most evil and sinister practice, if we got rid of it millions of lives would be 100 times better, why? Because they use medications… If you thought that guessing someone’s mental illness diagnose is bad, wait until you hear about medications which I covered above. Imagine buying a car someone built, told you “Hey we don’t know what could happen to you 3 months later,deoendence is a given which you’re be misdiagnosed with a addiction and treated like a addict which is false, not your fault at all there’s a difference between addiction and medication dependence, the withdrawal symptoms can be permanent and hey if the car has issues, we don’t have any medical treatment nor screening processes to help you you’re mostly be misdiagnosed with MS, ALS, IBS, Fibromyalgia all the way to Somatic syndrome… Good luck,”.
Would you buy that car?
The only study we have is a 2018 report which is a meta analysis (Multiple small reports collected and viewed as one for a conclusion). This report involved 552 case studies involving 21 popular antidepressants… The conclusion was that Antidepressants are slightly better then a placebo effect… I’ll say that again, slightly better. That’s the best we could do since 1980,and Benzos has no studies long term.
Not only did this 2018 entry fail to suggest how long this meta analysis lasted for but it didn’t cover the symptoms people felt.
This is serious, people are living with misdiagnosed syndromes caused by antidepressants/Benzos and no one can figure out what’s wrong.

Another issue is how normalized mental health is, again mental health is real but how we approach it is a disaster. If you call out how bad these meds and Psychology/Psychiatry are you will be labeled, told you are stigmatizing mental health which is ridiculous.

The last issue is we don’t know what else these meds touch, we know they attach to:

Antidepressants (SSRI/SNRI):

Dopamine D1, D2, D3, D4, and D5

Serotonin:5-HT1, 5-HT2, 5-HT3, 5-HT4,5-HT5, 5-HT6, 5-HT7

Benzos:
GabaA receptors

But out side of that we know nothing more. We know they work by disabling and shrinking the brain which is terrifying. Imagine what else they do that we don’t know about.

Comment on Best jobs for chronic pain sufferers by DEBRA LEATHWOOD

DEBRA LEATHWOOD — Mon, 06 Feb 2023 23:02:23 +0000

I REALLY APPRECIATED THIS PAGE AS IM CURRENTLEY ON SICK FROM WORK WITH 3 BULGING DISCS AND THEY ARE PRESSING ON THE NERVES IN MY BACK AND MY LEG NOW MY ARM ALSO IM STRUGGLING ON UNIVERSAL CREDIT AT THE MOMENT IVE BEEN A CARER FOR 26 YEARS AND FOUND I COUID NOT CARRY ON THATS ALL IVE DONE ALL MY LIFE SO FAR IM IN PAIN ALL THE TIME TRYING TO FIND THE THE CORRECT PAIN RELEIFE AND IM CURRENTLY DOING PHYSIO THERAPY WHICH I HONESTLY DONT FEEL IS DOING ANY GOOD ID LIKE TO FIND WORK THAT IM COMFORTABLE DOING NO IDEA WHAT I HOPE THIS COULD HELP

Comment on Online Counseling: Help at Your Fingertips by Julia Mauk

Julia Mauk — Sun, 18 Dec 2022 23:09:16 +0000

My name is Julia M. I have lived with chronic pain for nearly 30 years now. I can remember being plied with a lot of medication because none of the surgical procedures or implants of various treatment devices helped me at all. The one thing I want to say is that being an alcoholic myself with over 31 years of sobriety a drug addict will always be able to find their drug of choice. I think that patients can be watched and certainly delineated from a true addict to a person simply wanting a day free of pain. What CDC has done is punished those of us who live with incurable nearly untreatable chronic pain where you almost have to seek outside sources to give us the medication needed to control that pain in some form. What a real chronic pain patient do that no they do not want to chance losing the treatment that they do have . Is that the correct way? I think not. However our options are limited because physicians are in fear having to be concerned about the possibility of losing their practice even jail prison time consequently those of us who really need the help you, we don’t get it. If a person is truly in extreme chronic pain and conditions thereof they can be set apart from addicts in that they follow the directions, they’re cautious with the use of medication and would never consider selling that medication to anyone because they themselves are in desperate need of it. Do I want 360 morphines per month no 240 Somas per month no, more than 40 mg of methadone per day no. Would I choose this lifestyle for myself, really?!?
I have had other treatment options one of which was a spinal stimulator it ended up causing me more grief more pain and more surgery to fix it not only that, it’s led to doctors who will not treat me if I am not willing to try these new procedures. I had a doctor completely detox me from all pain medications and muscle relaxants anything having to do with pain and left me in a position where I could barely walk much less function normally on a regular day. Do I push myself? I do am I afraid of addiction I am not because I have been taught how to manage and maintain a life of sobriety even when having to take medication for a chronic pain condition. There are organizations out there that have a lot of good information however if you are new to chronic pain you will not know what to believe. I teamed up many years ago with the National Chronic Pain Society I ended up starting a group meeting in my town for chronic pain patients, what I found was a lot of people (not the organization) pushing their own ideas on others telling them this will work or that will work or the other will work. That is not always necessarily true. We cannot know what will work for any patient anymore than we can know how bad chronic pain is for each individual, how much pain can a person tolerate and how can I say my pain is worse than yours when I don’t know what tolerance level your body has. I also have an implanted pain pump, this pump drips medication from catheter’s implanted into my spinal canal this is done on a trial of settings to find a good pre -determined amount of and type of drug is best suited for my chronic pain management. What’s needed to treat my chronic pain. I have discovered that the pump is very effective from the catheter placement downward, the efficacy is far greater. Do I still have a need for breakthrough pain medication yes I do only it is a far less amount of medication than I took without the pump. One of the problems I have ran into is that physicians are afraid to prescribe breakthrough medication because a patient has a pump, they think it should be doing all of the work . Unfortunately that is not the case. Do I still use 360 morphine pills per month no I do not I can take up to three in a day there are some days where I take only two, others I wish I could take five! I have a Multiphase incurable illness that causes me pain throughout my body. If you are a physician take your time with your patient, get to know them, stop taking the medication they desperately need away from them and recognize the behavior of a true opiate addict. Most doctors already know this. I do not think our government does. Nor do I believe the government should be allowed to tell a doctor who has many years of education, what they can or cannot use to treat their patients. Just saying…

Comment on Paula Abdul Cover Story: Straight Up on RSD by Jessica

Jessica — Wed, 26 Jan 2022 04:00:54 +0000

My name is Jessica and I suffer crps..my story is on ” the tilted needle” channel youtube! Im trying to reach out to Paula as I am putting together a big charity Gala in SAV, GA this year 2022..and id love her to come help support our cause! Ive created 30 looks, using real women who ride motorcycles to show them off! The show will benefit the RSDS.ORG foundation and we will blast the internet w the images. We will sell calanders and look books. We are currently looking for sponsors for Ads. This is my first show in 13 years since I got ill from this horrible illness.. i was a dancer, model , fashion designer to stars in Fl..and lost it all to the illness..one last time im showcasing my talent for a good cause! Id love Keanu reeves to come support us w his bikes..since my son is
Named keanu after watching Paula’s Rush Rush video as a teen! Paula was my hero as a dancer, and to know we both share this illness is humbling! Please PAULA we need you for this, u can sign calanders and auction items! Please contact me! Cid407@ yahoo.com put attn jessica
If anyone wants info. On show you may email there as well. This illness has taken everything away I loved..please help me find my purpose again by supporting my cause!

Comment on Postherpetic Neuralgia by Kay Brooks

Kay Brooks — Wed, 26 Jan 2022 02:50:26 +0000

I have PHN also. Recently I came across research that has been done on high dose Vitamin C infusion therapy. I had it done at a local IV infusion salon with really good promising results. I am on the FB group Post herpetic neuralgia (PHN)/Chronic neuralgia support group and posted my experience there.
I just don’t know why this isn’t more widely known in the pain management practices of physicians that help manage this disease.